GENERAL MEDICAL RESOURCES

Virtual Pediatric Hospital
General resources for parents; health tips, patient booklets that allow parents to research conditions by symptom, topic, area of body, and specialty
virtualpediatrichospital.org

Cochrane Collaboration
An international non-profit and independent organization dedicated to making up-to-date, accurate information about the effects of healthcare readily available worldwide; produces and disseminates systematic reviews of healthcare interventions; promotes the search for evidence in the form of clinical trials and other studies of interventions; major product is the Cochrane Database of Systematic Reviews
www.cochrane.org/docs/descrip.htm

Dermatology Atlas--Alphabetized Index
A large archive from Loyola University of pictures of dermatological conditions.
www.meddean.luc.edu/lumen/MedEd/medicine/dermatology/melton/atlas2.htm

eMedicine
Online publisher of medical reference information for physicians and other healthcare professionals
www.emedicine.com/

Entrez PubMed
Publicly accessible medical search site
www.ncbi.nlm.nih.gov/entrez/query.fcgi

GARD (Genetic & Rare Diseases Information Center for the Human Genome Research Institute)
Contact information, FAQ sheets, and good resource list
www.genome.gov/10000409

Ingenta Home Page
One of the hallmark search engines for academic and medical articles on the web; searches has access to a myriad of journals
www.ingentaconnect.com

MedicAlert
A healthcare informatics organization dedicated to providing services to members that protect and save lives
www.medicalert.org

MedlinePlus
A site under the NIH and National Library of Medicine that allows one to find articles about diseases, conditions, and treatments, with physician references, drug information, dictionaries, and encyclopedias; also periodic updates on medical breakthroughs and new findings
www.nlm.nih.gov/medlineplus/

Neurosurgery at Massachusetts General Hospital
Neurosurgical services site for Massachusetts General Hospital; describes current research and gives info on their procedures and facilities
neurosurgery.mgh.harvard.edu/

NORD (National Organization of Rare and Orphan Diseases)
Website has an enormous list of links; also information on available grants and new research, a good searchable database of rare diseases, articles on rare diseases, and corresponding agencies/ foundations that deal with those conditions
www.rarediseases.org/

Pediatrics
Pediatric search site with the option to search as a physician or a parent; references the over 50 legitimate pediatric internet sites
www.generalpediatrics.com

Syndromes/Leukon 2002
A definitional list of genetic syndromes, diseases, and conditions
www.geocities.com/leukon2002/ped-consult/Appendix/syndromes.htm

WebMD Health
One of the largest and most extensive online databases for general health inquiries, and retrieving articles on current and archived medical research
my.webmd.com/webmd_today/home/default.htm

CONDITION-SPECIFIC SITES

ASAP (American Syringomyelia Alliance Project)
Nationwide clearinghouse for information regarding Chiari (CM) and syringonyelia (SM) and related disorders
www.asap.org

The Chiari Institute
A research and treatment facility established by the North Shore-Long Island Jewish Health System to deal with Chiari malformation and Syringomyelia; primarily directed to current and future patients of the institute
www.thechiariinstitute.com/

Conquer Chiari News
Website of the C&S Patient Education Foundation, which is dedicated to improving the experiences and outcomes of Chiari and syringomyelia patients through education, awareness, and research; publishes Chiari & Syringomyelia News so that patients and their families have access to the information they need to take control of their healthcare and make informed, intelligent decisions
www.conquerchiari.org/index.htm

EDNF (Ehlers Danlos National Foundation)
Information about the Ehlers-Danlos Syndromes and is intended for people with EDS, their families, medical professionals and the general public
www.ednf.org

Infantile Scoliosis Outreach Program
A website dedicated to improving the standard of knowledge, means of prevention, treatment and diagnosis of infantile scoliosis
www.infantilescoliosis.org

TOFS/UK
A non-profit dedicated to supporting the families of children born unable to swallow; providing good quality information, useful resources and help making contact with one another
www.tofs.org.uk/

ALTERNATIVE MEDICINE

Body Awareness
Website of Don Kipp, developer of NER (Neuroenergy Release) advanced therapy for pain relief, injury care, health enhancement
www.body-awareness.com/

Chanda Plan Foundation
Colorado-based non-profit providing alternative medical treatments for people with disabilities
www.thechandaplanfoundation.org

Chicken Soup Chinese Medicine
Site for health care consumers physicians, allied health professionals, other interested parties to become more familiar with the systems of medicine and healing that come from the East
www.docmisha.com/

IMA (Integrative Medicine Alliance)
An open, diverse network of concerned citizens including: doctors, nurses, acupuncturists, chiropractors, pharmacists, homeopaths, herbalists, energy healers, massage and shiatsu therapists, movement educators, traditional healers, teachers, public health advocates, researchers, business professionals, parents, and students
www.integrativemedalliance.org

Integrative Medical Solutions
Personalized medical literature searches and patient advocacy services; seeking the most effective options for improvement and recovery, helping to evaluate choices, and work to get the best possible care from existing physicians
www.drbouch.com

ISSSEEM (The International Society for the Study of Subtle Energies and Energy Medicine)
Organization dedicated to exploring and applying subtle energies as they relate to the experience of consciousness, healing, and human potential; offering a community with a widespread appreciation of the energetic component within many disciplines including quantum physics, therapeutic modalities, healing, psychology, consciousness, psi and the understanding of our multidimensional existence
www.issseem.org/

The Nutrition Doc
Online office of Dr. Connie Sanchez, licensed Naturopathic Physician, nutritionist & fitness expert
www.thenutritiondoc.com

Whole Health Solutions
Karlo Berger, ABT, LMT’s website building bridges to the holistic health sector for individuals and healthcare organizations
www.karloberger.com

PUBLIC POLICY SITES

RAM (Remaking American Medicine)
Created to help inspire, motivate and connect people and institutions that are dedicated to improving health care quality
www.ramcampaign.org